North American Mitochondrial Disease Consortium Patient Registry and Biorepository (NAMDC)
Recruiting
Observational Study
Mitochondrial DisordersMitochondrial Genetic DisordersMitochondrial DiseasesDisorder of Mitochondrial Respiratory Chain ComplexesDeletion and Duplication of Mitochondrial DNA
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
Ready to participate?
Review the details below, then apply to join this clinical trial.
At a Glance
Sex
Any
Study type
Observational
Participants needed
1,000 (estimated)
Sponsor
Columbia University · Other
Who this trial is looking for
This trial is looking for people who have mitochondrial disorders or are suspected to have them. Participants will provide medical information and tissue samples to help with research.
Are You a Good Fit for This Trial?
You may be able to join if
I have been diagnosed with a mitochondrial disorder
I am an adult carrier of known mitochondrial DNA mutations
I have lab results that suggest I have a mitochondrial disorder
I have medical information and tissue samples from a deceased individual who meets the criteria
You may not be able to join if
I am not suspected of having a mitochondrial disorder
I am not suspected of carrying a mitochondrial DNA mutation
Summarized in plain language from this trial's official eligibility criteria.
The full criteria are further down this page — only the research team can
confirm whether you qualify.
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
The North American Mitochondrial Disease Consortium (NAMDC) maintains a patient contact registry and tissue biorepository for patients with mitochondrial disorders.
Trial Locations
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Status
Eligibility Criteria
Inclusion Criteria:
* Patients diagnosed with or suspected to have a mitochondrial disorder
* Adult carriers of known mitochondrial DNA mutations
* Patients with laboratory analysis indicative of a mitochondrial disorder.
* Medical information and tissue samples are also accepted from deceased indi…
Inclusion Criteria:
* Patients diagnosed with or suspected to have a mitochondrial disorder
* Adult carriers of known mitochondrial DNA mutations
* Patients with laboratory analysis indicative of a mitochondrial disorder.
* Medical information and tissue samples are also accepted from deceased individuals who fulfill the above criteria.
Exclusion Criteria:
* Patients not suspected of having a mitochondrial disorder
* Patients not suspected of carrying a mitochondrial DNA or nuclear DNA mutation that affects mitochondrial function.
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