Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry
Recruiting
Observational Study
Myotonic Dystrophy
Facioscapulohumeral Muscular Dystrophy
Muscular Dystrophy
Myotonic Dystrophy Type 1
Myotonic Dystrophy Type 2
Congenital Myotonic Dystrophy
PROMM (Proximal Myotonic Myopathy)
Steinert's Disease
Myotonic Muscular Dystrophy
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 3,000 (estimated)
- Sponsor
- University of Rochester · Other
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
Check Your Eligibility
About This Trial
Myotonic dystrophy (DM) and facioscapulohumeral muscular dystrophy (FSHD) are inherited disorders characterized by progressive muscle weakness and loss of muscle tissue. The purpose of this registry is to connect people with DM or FSHD with researchers studying these diseases. The registry will offer individuals with DM and FSHD an opportunity to participate in research that focuses of their disea…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Diagnosed with DM, FSHD, or related diseases or are an unaffected family member of someone diagnosed with one of these diseases
Contacts