Registry for Diamond Blackfan Anemia Patients
Diamond Blackfan Anemia Registry (DBAR)
- Sex
- Any
- Study type
- Observational
- Participants needed
- 900 (estimated)
- Sponsor
- Northwell Health · Other
This trial is looking for patients with Diamond Blackfan anemia, a rare blood condition. By participating, you will help create a comprehensive registry of people affected by this disease.
You may be able to join if
- I have been diagnosed with Diamond Blackfan anemia.
- I have anemia that developed early in childhood.
- I have low levels of reticulocytes.
- I have a bone marrow that shows normal cells but a lack of red blood cell precursors.
- I have a normal or slightly low white blood cell count.
- I have a normal or often increased platelet count.
- I have a confirmed mutation in a DBA gene.
You may not be able to join if
- I have another bone marrow failure syndrome.
Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.
Think this trial could be right for you?
Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.
Check Your EligibilityThe purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).
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