Diamond Blackfan Anemia Registry (DBAR)
Recruiting
Observational Study
Anemia
Blood Disease
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 900 (estimated)
- Sponsor
- Northwell Health · Other
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About This Trial
The purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Patients must meet the diagnostic criteria for DBA which include the following:
1. Normochromic, usually macrocytic and occasionally normocytic anemia developing early in childhood
2. Reticulocytopenia
3. Normocellular bone marrow with a selective deficiency of red cell…
Contacts