Identifying Genetic Causes of IC/BPS

Recruiting Observational Study
Interstitial Cystitis Bladder Pain Syndrome
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
1 and older
Sex
Any
Study type
Observational
Participants needed
1,000 (estimated)
Sponsor
Boston Children's Hospital · Other
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About This Trial
Interstitial cystitis (IC), also called Bladder Pain syndrome (BPS) is a common condition with no known cause or cure. Twin studies and family accounts have suggested that the condition may be genetic or passed down (inherited) from one generation to another. In this study, the investigators are collecting genetic material via blood or saliva and medical information from families in North America…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Diagnosis of IC/BPS * Males and females of any age * Urinary frequency - more than 1X/hour, and/or * Dysuria, and/or * Pelvic, suprapubic, or abdominal pain - for 3 months or longer * Nocturia * Normal urinary stream (by history) * No evidence of active bacterial UTI (no pyuri…
Contacts

Elicia A Estrella, MS, LCGC

617-919-4552

elicia.estrella@childrens.harvard.edu

CONTACT

Stephanie Brewster, MS, LCGC

Stephanie.Brewster@childrens.harvard.edu

CONTACT