Molecular Analysis of Patients With Neuromuscular Disease

Recruiting Observational Study
Neuromuscular; Disorder, Hereditary Duchenne/Becker Muscular Dystrophy Limb-girdle Muscular Dystrophy
No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
1 Week – 100
Sex
Any
Study type
Observational
Participants needed
1,000 (estimated)
Sponsor
Boston Children's Hospital · Other
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About This Trial
The purpose of this study is to identify new genes responsible for neuromuscular disorders and study muscle tissue of patient with known neuromuscular disease, as well as their family members. We are interested in recruiting many types of neuromuscular disease including; Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), and limb-girdle muscle dystrophy (LGMD). There are still man…
Trial Locations
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Eligibility Criteria
The samples used in this study will be derived from individuals at risk for, or suffering from, neuromuscular disease, generally resulting in clinical weakness of one or more muscle groups and their family members. Inclusion criteria: 1. having a clinical and/or pathological diagnosis of a muscula…
Contacts

Elicia A Estrella, MS, LCGC

617-919-4552

elicia.estrella@childrens.harvard.edu

CONTACT

Casie Genetti, MS,LCGC

617-919-2169

Casie.Genetti@childrens.harvard.edu

CONTACT