The Alpha-1 Foundation's and University of Florida's Alpha-1 Coded Testing (ACT) Study

Recruiting Observational Study
Alpha-1 Antitrypsin Deficiency
Healthy Volunteers Welcome You do not need to have the condition being studied to take part. No Study Drug Researchers observe your health over time — no experimental treatment is given.
Ready to participate?

Review the details below, then apply to join this clinical trial.

At a Glance
Sex
Any
Study type
Observational
Participants needed
50,000 (estimated)
Sponsor
University of Florida · Other
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About This Trial

The Alpha-1 Coded Testing (ACT) Study was established to study genetic testing and outcomes of individuals at risk for alpha-1 antitrypsin deficiency.

Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Individuals of any age at risk for alpha-1 antitrypsin deficiency on the basis of symptoms or family genetic risk. Exclusion Criteria: * Any person who has already had genotype and AAT level testing completed and has a qualified result.
Contacts

Michelle Owens, RN, BSN

352-273-6339

Sandra.Owens@medicine.ufl.edu

CONTACT

Allison Faunce, B.A.

352-273-8666

Allison.Faunce@medicine.ufl.edu

CONTACT