Rare Kidney Stone Consortium Patient Registry
Recruiting
Observational Study
Primary Hyperoxaluria
Dent Disease
Cystinuria
APRT Deficiency
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 0 – 100
- Sex
- Any
- Study type
- Observational
- Participants needed
- 730 (estimated)
- Sponsor
- Mayo Clinic · Other
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About This Trial
The purpose of this study is to collect medical information from a large number of patients in many areas of the world with primary hyperoxaluria (PH), Dent disease, Cystinuria and APRT deficiency. This information will create a registry that will help us to compare similarities and differences in patients and their symptoms. The more patients we are able to enter into the registry, the more we wi…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Individuals must have a definitive diagnosis of Primary Hyperoxaluria, Dent Disease, Cystinuria or APRT Deficiency.
* Individuals have a family history of a sibling with Primary Hyperoxaluria,Dent Disease, Cystinuria or APRT Deficiency.
Exclusion Criteria:
* Individuals who …
Contacts