Characterization of Familial Myopathy and Paget Disease of Bone

Recruiting Observational Study
Muscle Disorder Bone Disorder
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
18 and older
Sex
Any
Study type
Observational
Participants needed
25 (estimated)
Sponsor
University of California, Irvine · Other
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About This Trial
The researcher wants to explore the genetic causes of muscle disease. The researcher is particularly interested in muscle disorders that occur in combination with diseases of bone that appear to be passed on from generation to generation. Diffuse Optical Spectroscopy will measure the concentrations of blood, water, and lipids (fats, for example) in your tissues. This device essentially measures t…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: Male or Female age 18 and older * diagnose of Muscle or bone disorders * with a combination of medical problems including muscle and bone disease and their family members. Exclusion Criteria: * under 18 year of age * unrelated diagnosis
Contacts

Marie Wencel, BS

949-824-0521

mwencel@uci.edu

CONTACT

Virginia Kimonis, MD

714-456-5791

vkimonis@hs.uci.edu

CONTACT