Registry for Lymphangioleiomyomatosis Cases in France
National Lymphangioleiomyomatosis Registry, France
Recruiting
Observational Study
Lymphangioleiomyomatosis
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
Ready to participate?
Review the details below, then apply to join this clinical trial.
At a Glance
Age
18 and older
Sex
Any
Study type
Observational
Participants needed
200 (estimated)
Sponsor
Vincent COTTIN · Other
Who this trial is looking for
This trial is looking for people with lymphangioleiomyomatosis to gather information about the condition. Participants will be included in a registry that tracks their health and lung function over time.
Are You a Good Fit for This Trial?
You may be able to join if
I have been diagnosed with sporadic lymphangioleiomyomatosis
I have been diagnosed with lymphangioleiomyomatosis associated with tuberous sclerosis
I have been diagnosed, hospitalized, or seen in consultation since January 1, 2008
Summarized in plain language from this trial's official eligibility criteria.
The full criteria are further down this page — only the research team can
confirm whether you qualify.
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
RE-LAM-CE is a registry of lymphangioleiomyomatosis cases in France. its aim is to determine the incidence and prevalence of lymphangioleiomyomatosis in France, including demographic information and information concerning the timing and modalities of diagnosis.
Based on the registry, we will set up a prospective cohort of patients. The database will include detailed medical information, particula…
RE-LAM-CE is a registry of lymphangioleiomyomatosis cases in France. its aim is to determine the incidence and prevalence of lymphangioleiomyomatosis in France, including demographic information and information concerning the timing and modalities of diagnosis.
Based on the registry, we will set up a prospective cohort of patients. The database will include detailed medical information, particularly regarding progression of the respiratory function.
Trial Locations
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Facility
City
State
Country
Status
Eligibility Criteria
Inclusion Criteria:
* Patients with sporadic lymphangioleiomyomatosis or associated with Tuberous sclerosis.
* patients diagnosed or hospitalized or seen in consultation since 01/01/2008
Exclusion Criteria:
* None
Inclusion Criteria:
* Patients with sporadic lymphangioleiomyomatosis or associated with Tuberous sclerosis.
* patients diagnosed or hospitalized or seen in consultation since 01/01/2008
Exclusion Criteria:
* None
Contacts
Vincent Cottin, MD
33-427-857-700
CONTACT
Raphaële Guelminger, CRA
33-472-357-074
CONTACT
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