Institutional Registry of Haemorrhagic Hereditary Telangiectasia
Recruiting
Observational Study
Haemorrhagic Hereditary Telangiectasia
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 590 (estimated)
- Sponsor
- Hospital Italiano de Buenos Aires · Other
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About This Trial
The purpose of this study is to create an institutional and population-based registry of Haemorrhagic Hereditary Telangiectasia with a prospective survey based on epidemiological data, risk factors, diagnosis, prognosis, treatment, monitoring and survival.
This study will also describe the occurrence of Haemorrhagic Hereditary Telangiectasia in the population of HIBA in the Central Hospital, as w…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
1. Patients with HHT defined.
2. Followed in Unidad HHT of Hospital Italiano de Buenos Aires.
Exclusion Criteria:
1\. Denied to participated in the registry or inform consent process.
Contacts