Neurofibromatosis (NF) Registry Portal
Recruiting
Observational Study
Neurofibromatosis 1
Neurofibromatosis 2
Schwannomatosis
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 20,000 (estimated)
- Sponsor
- The Children's Tumor Foundation · Other
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
Check Your Eligibility
About This Trial
The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Diagnosed with NF1
* Diagnosed with NF2
* Diagnosed with Schwannomatosis
Exclusion Criteria:
* Failure to complete account registration
Contacts