The Duchenne Registry
Recruiting
Observational Study
Duchenne Muscular Dystrophy
Becker Muscular Dystrophy
Dystrophinopathy
Dystrophinopathy Symptomatic Female Carrier
Dystrophinopathy Female Carrier
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 10,000 (estimated)
- Sponsor
- The Duchenne Registry · Other
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About This Trial
The Duchenne Registry is an online, patient-report registry for individuals with Duchenne and Becker muscular dystrophy and carrier females. The purpose of the Registry is to connect Duchenne and Becker patients with actively recruiting clinical trials and research studies, and to educate patients and families about Duchenne and Becker care and research. At the same time, The Duchenne Registry is …
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Diagnosis of Duchenne or Becker muscular dystrophy; Manifesting female carriers and asymptomatic female carriers also included in registry.
Exclusion Criteria:
* Diagnosis of any other type of muscular dystrophy (including limb-girdle muscular dystrophy).
Contacts