Survey Participation for Parkinson's and Related Conditions
Modifiable Variables in Parkinsonism (MVP)
Recruiting
Observational Study
Parkinson's DiseaseParkinsonismMSA - Multiple System AtrophyProgressive Supranuclear PalsyShy-Drager SyndromeCorticobasal DegenerationDementia With Lewy BodiesPick DiseaseOlivopontocerebellar Atrophies
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
Ready to participate?
Review the details below, then apply to join this clinical trial.
At a Glance
Age
19 and older
Sex
Any
Study type
Observational
Participants needed
2,000 (estimated)
Sponsor
Bastyr University · Other
Who this trial is looking for
This trial is looking for people with Parkinson's disease or related conditions. Participants will fill out online surveys about their health and experiences every six months for five years.
Are You a Good Fit for This Trial?
You may be able to join if
I have been diagnosed with Parkinson's disease.
I have been diagnosed with Parkinsonism.
I have been diagnosed with a Parkinson-plus syndrome.
I have online access and an email address.
I can complete online surveys every six months for five years.
You may not be able to join if
I cannot read or write in English.
I am unable or unwilling to complete surveys every six months.
Summarized in plain language from this trial's official eligibility criteria.
The full criteria are further down this page — only the research team can
confirm whether you qualify.
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health i…
We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years.
Trial Locations
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Status
Eligibility Criteria
Inclusion Criteria:
* Parkinson's disease (PD)
* Parkinsonism
* Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies)
* Must have online access, an email address, basic computer literacy
* Mus…
Inclusion Criteria:
* Parkinson's disease (PD)
* Parkinsonism
* Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies)
* Must have online access, an email address, basic computer literacy
* Must be willing to complete online surveys every 6 months for 5 years
Exclusion Criteria:
* Inability to read/write English
* Inability or unwillingness to complete surveys every six (6) months (\~90 min)
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