Swiss National Registry of Adults With Congenital Heart Disease
Recruiting
Observational Study
Congenital Heart Disease
Congenital Heart Defect
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 18 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 5,000 (estimated)
- Sponsor
- University Hospital, Basel, Switzerland · Other
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About This Trial
Due to successes in the last decades in pediatric heart surgery and cardiology, 90-95% of the children with congenital heart disease reach adult age.This results in an increasing number of adults or "grown-ups" with congenital heart disease (ACHD or GUCH patients) that require special health care organization and training programmes. Long term complications of these GUCH patients and optimum treat…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
Adult (above 18 years of age) with congenital heart disease, treated in one of the Swiss centre with specialized organisation for GUCH patients.
Signed informed consent. Patients with trisomy 21: the parents or legal guardian will have to give the consent.
Exclusion Criteria:
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Contacts