International Rare Histiocytic Disorders Registry (IRHDR)
Recruiting
Observational Study
Rare Histiocytic Disorders (RHDs)
Erdheim-Chester Disease (ECD)
Rosai-Dorfman Disease (RDD)
Xanthogranuloma Family (XG)
Indeterminate Dendritic Cell Histiocytosis
Malignant Histiocytic Neoplasm (MHN)
ALK-positive Histiocytosis
Mixed Histiocytosis (MXH)
Multicentric Reticulohistiocytoma (MRH)
Necrobiotic Xanthogranuloma (NX)
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 400 (estimated)
- Sponsor
- The Hospital for Sick Children · Other
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About This Trial
The rare histiocytic disorders (RHDs) are characterized by the infiltration of one or more organs by non-LCH histiocytes. They can range from localized disease that resolves spontaneously, to progressive disseminated forms that can be sometimes life-threatening. Since they are extremely rare, there is limited understanding of their causes and best treatment options. Physicians, patients and parent…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
1. Any age at diagnosis.
2. Diagnosis of a rare histiocytic disorder, established before or after the opening of the registry.
3. Cases diagnosed from January - 01- 1995 until the present time and prospectively.
4. Signed informed consent by a patient, or parent/legal guardian.
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Contacts