International Pachyonychia Congenita Research Registry
Recruiting
Observational Study
Pachyonychia Congenita
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 2,000 (estimated)
- Sponsor
- Pachyonychia Congenita Project · Other
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
Check Your Eligibility
About This Trial
International Pachyonychia Congenita Research Registry (IPCRR) is a patient registry for those suffering from Pachyonychia Congenita (PC). PC is an ultra-rare extremely painful skin disorder that causes painful blisters and callus on feet and sometimes hands, thickened nails, cysts and other features. The IPCRR consists of a questionnaire, patient photos, optional physician notes from telephone co…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Clinical diagnosis of Pachyonychia Congenita or similar disorder
Exclusion Criteria:
* N/A
Contacts