Myotonic Dystrophy Family Registry
Recruiting
Observational Study
Myotonic Dystrophy
Congenital Myotonic Dystrophy
Myotonic Dystrophy 1
Myotonic Dystrophy 2
Dystrophia Myotonica
Dystrophia Myotonica 1
Dystrophia Myotonica 2
Myotonia Dystrophica
Myotonic Dystrophy, Congenital
Myotonic Myopathy, Proximal
PROMM (Proximal Myotonic Myopathy)
Proximal Myotonic Myopathy
Steinert Disease
Steinert Myotonic Dystrophy
Steinert's Disease
Myotonia Atrophica
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 3,500 (estimated)
- Sponsor
- Myotonic Dystrophy Foundation · Other
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
Check Your Eligibility
About This Trial
The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Diagnosed with congenital, juvenile-onset or adult onset DM1 or DM2 (confirmed by clinical exam or genetic test)
Exclusion Criteria:
* Not diagnosed with DM, unaffected family members
Contacts