Lymphatic Anomalies Registry for the Assessment of Outcome Data
Recruiting
Observational Study
Lymphatic Malformation
Generalized Lymphatic Anomaly (GLA)
Central Conducting Lymphatic Anomaly
CLOVES Syndrome
Gorham-Stout Disease ("Disappearing Bone Disease")
Blue Rubber Bleb Nevus Syndrome
Kaposiform Lymphangiomatosis
Kaposiform Hemangioendothelioma/Tufted Angioma
Klippel-Trenaunay Syndrome
Lymphangiomatosis
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 1,000 (estimated)
- Sponsor
- Boston Children's Hospital · Other
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About This Trial
Lymphatic anomalies are a rare subset of vascular anomalies that are poorly understood. the understanding of the natural history, long-term outcomes, risk factors for morbidity and mortality, and the relative benefit of medical therapies and procedures is limited.The goal of this project is to better understand these diseases and improve the care of theses rare patients. To do this, the investigat…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Clinical diagnosis of complex vascular tumor, malformation or overgrowth syndrome with significant lymphatic component
Contacts