International Primary Ciliary Dyskinesia (PCD) Registry
Recruiting
Observational Study
Primary Ciliary Dyskinesia (PCD)
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 2,000 (estimated)
- Sponsor
- University Hospital Muenster · Other
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About This Trial
The purpose of the international prospective PCD Patient Registry is to systematically measure, survey and compare different aspects of PCD manifestation, course and treatment, to provide data for epidemiological research and to identify special patient groups suitable for multi-center trials.
This International PCD Registry is also part of the European Reference Network ERN-LUNG. We follow the r…
Trial Locations
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Eligibility Criteria
Inclusion Criteria
Patients of any age who fulfil the diagnostic criteria below are eligible:
Clinical presentation consistent with PCD and consistent findings specific for PCD in at least two of the following methods:
high frequency video microscopic finding transmission electron microscopy find…
Contacts