Inherited Retinal Degenerative Disease Registry
Recruiting
Observational Study
Eye Diseases Hereditary
Retinal Disease
Achromatopsia
Bardet-Biedl Syndrome
Bassen-Kornzweig Syndrome
Batten Disease
Best Disease
Choroidal Dystrophy
Choroideremia
Cone Dystrophy
Cone-Rod Dystrophy
Congenital Stationary Night Blindness
Enhanced S-Cone Syndrome
Fundus Albipunctatus
Goldmann-Favre Syndrome
Gyrate Atrophy
Juvenile Macular Degeneration
Kearns-Sayre Syndrome
Leber Congenital Amaurosis
Refsum Syndrome
Retinitis Pigmentosa
Retinitis Punctata Albescens
Retinoschisis
Rod-Cone Dystrophy
Rod Dystrophy
Rod Monochromacy
Stargardt Disease
Usher Syndrome
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 20,000 (estimated)
- Sponsor
- Foundation Fighting Blindness · Other
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
Check Your Eligibility
About This Trial
The My Retina Tracker® Registry is sponsored by the Foundation Fighting Blindness and is for people affected by one of the rare inherited retinal degenerative diseases studied by the Foundation. It is a patient-initiated registry accessible via a secure on-line portal at www.MyRetinaTracker.org. Affected individuals who register are guided to create a profile that captures their perspective on the…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Diagnosed with an inherited retinal degenerative disease OR
Exclusion Criteria:
* Glaucoma only
* Diabetic retinopathy only
* Non-retinal disease
* Not heritable retinal disease
Contacts