The EUROSCA Natural History Study

Recruiting Observational Study
Spinocerebellar Ataxia
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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Review the details below, then apply to join this clinical trial.

At a Glance
Age
18 and older
Sex
Any
Study type
Observational
Participants needed
400 (estimated)
Sponsor
Ataxia Study Group · Other
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About This Trial

The key goals of EUROSCA-NHS is to determine and compare the rate of disease progression in SCA1, SCA2, SCA3 and SCA6 including determination of the order and occurrence of non-ataxia symptoms, assessment of activities of daily living (ADL) and quality of life (QoL), and identification of predictors of disease progression and survival.

Trial Locations
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Eligibility Criteria
Inclusion criteria: * Progressive, otherwise unexplained ataxia * Positive genetic testing for SCA1, SCA2, SCA3, and SCA6 * Written informed consent by the patient or his legal agent Exclusion criteria: None.
Contacts

Thomas Klockgether, Prof. Dr.

+4922828715736

thomas.klockgether@ukb.uni-bonn.de

CONTACT

Heike Jacobi, Dr.

heike.jacobi@ukb.uni-bonn.de

CONTACT