A National Registry For Pulmonary Alveolar Proteinosis
Recruiting
Observational Study
Pulmonary Alveolar Proteinosis
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 500 (estimated)
- Sponsor
- Children's Hospital Medical Center, Cincinnati · Other
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About This Trial
The major goal of Part A of this study is to establish a National PAP Registry to help make reliable new research tests available to doctors to improve the diagnosis of PAP, increase awareness and knowledge of PAP, and give patients a 'seat at the table' in planning and conducting PAP research including the clinical testing of several new potential therapies. The major goal of Part B of this study…
Trial Locations
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Eligibility Criteria
Inclusion Criteria for Part A and Part B:
* Written informed consent and assent, if applicable
Inclusion Criteria for Part A (Cross Sectional Study of PAP Syndrome)
* History of chest computed tomogram or chest radiograph findings compatible with PAP
* History of diagnosis of PAP made by at least…
Contacts