The Fibrodysplasia Ossificans Progressiva (FOP) Registry
Recruiting
Observational Study
Fibrodysplasia Ossificans Progressiva (FOP)
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 800 (estimated)
- Sponsor
- The International FOP Association · Other
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About This Trial
The Fibrodysplasia Ossificans Progressiva (FOP) Registry is a global, non-interventional, voluntary database that captures demographic and disease data directly from FOP patients and their caregivers via a secure, web-based patient portal. A physician portal (in development) will allow physicians to enter clinical data about their patients. The objectives are to organize the international FOP comm…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Participants must have a confirmed diagnosis of FOP.
* Participants (or a parent or legal guardian) must be willing and able to provide written informed consent.
Exclusion Criteria:
* There are no exclusion criteria.
Contacts