Prospective Research Rare Kidney Stones (ProRKS)

Recruiting Observational Study
Hyperoxaluria Cystinuria Dent Disease Lowe Syndrome Adenine Phosphoribosyltransferase Deficiency
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Sex
Any
Study type
Observational
Participants needed
220 (estimated)
Sponsor
Mayo Clinic · Other
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About This Trial
The purpose of this study is to determine the natural history of the hereditary forms of nephrolithiasis and chronic kidney disease (CKD), primary hyperoxaluria (PH), cystinuria, Dent disease and adenine phosphoribosyltransferase deficiency (APRTd) and acquired enteric hyperoxaluria (EH). The investigator will measure blood and urinary markers of inflammation and determine relationship to the dise…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: 1. Diagnosis of primary hyperoxaluria 2. Diagnosis of enteric hyperoxaluria 3. Diagnosis of Dent Disease 4. Diagnosis of Cystinuria 5. Diagnosis of adenine phosphoribosyltransferase deficiency (APRTd) 6. Diagnosis of Lowe Syndrome 7. Diagnosis of Dent Disease Carrier Exclusion …
Contacts

Barb Seide

800-270-4637

RareKidneyStones@mayo.edu

CONTACT

Julie Olson, RN

800-270-4637

RareKidneyStones@mayo.edu

CONTACT