Registry for Patients With Castleman Disease

International Registry for Patients With Castleman Disease

Recruiting Observational Study
Castleman Disease Castleman's Disease Giant Lymph Node Hyperplasia Angiofollicular Lymph Hyperplasia Angiofollicular Lymph Node Hyperplasia Angiofollicular Lymphoid Hyperplasia GLNH Hyperplasia, Giant Lymph Node Lymph Node Hyperplasia, Giant
No Study Drug Researchers observe your health over time — no experimental treatment is given.
Ready to participate?

Review the details below, then apply to join this clinical trial.

At a Glance
Sex
Any
Study type
Observational
Participants needed
1,000 (estimated)
Sponsor
University of Pennsylvania · Other
Who this trial is looking for

This trial is looking for patients with Castleman disease to collect information that can help improve understanding and treatment of the condition. Taking part involves sharing data and may include patients who have passed away if they can provide certain medical reports.

Are You a Good Fit for This Trial?

You may be able to join if

  • I am any age
  • I have a pathology report suggesting I have Castleman disease
  • I can provide electronic consent as needed
  • I may be included even if I am deceased if a pathology report can be provided

Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.

Think this trial could be right for you?

Answer a few quick questions to see if you may meet the eligibility requirements.

Check Your Eligibility
About This Trial

The purpose of this study is to collect clinical, laboratory, and patient survey data from patients with Castleman disease to improve understanding, diagnosis, and treatment of the disease. Funding source - FDA OOPD.

Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Person of any age * Have a reference pathology report suggesting "Castleman disease" not limited to cutaneous involvement only that can be uploaded * Be able to provide electronic informed consent, as per local regulations * Deceased patients may also be enrolled when a refere…
Contacts

Joshua Brandstadter, MD, PhD, MSc

267-847-8220

joshua.brandstadter@pennmedicine.upenn.edu

CONTACT

Bridget Austin, MSc

2675869977

accelerate@uphs.upenn.edu

CONTACT