Improving Care for Infants with Hypoplastic Left Heart Syndrome
National Collaborative to Improve Care of Children With Complex Congenital Heart Disease
- Age
- Up to 15 Months
- Sex
- Any
- Study type
- Observational
- Participants needed
- 1,000 (estimated)
- Sponsor
- Children's Hospital Medical Center, Cincinnati · Other
This trial is looking for newborns diagnosed with Hypoplastic Left Heart Syndrome (HLHS) who are meant to have a specific heart surgery called the Norwood procedure. The goal is to gather information to help improve care for these infants.
You may be able to join if
- I have been diagnosed with hypoplastic left heart syndrome.
- I am a newborn or fetus.
- I am intended to undergo the Norwood procedure.
Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.
Think this trial could be right for you?
Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.
Check Your EligibilityThe purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.
Loading trial locations…