German Pediatric Hemophilia Research Database

Recruiting Observational Study
Hemophilia A Hemophilia B Children Drug Specific Antibodies
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
Up to 18
Sex
Any
Study type
Observational
Participants needed
800 (estimated)
Sponsor
Goethe University · Other
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About This Trial

The German Pediatric Hemophilia Research Database will collect data on the prophylactic and therapeutic use of factor concentrates, complications, outcome measures (joint scores, QoL) and living circumstances in newly diagnosed children with hemophilia.

Trial Locations
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Eligibility Criteria
Inclusion Criteria: * hemophilia A or B * FVIII/FIX \<1% to 25% * informed consent Exclusion Criteria: * no consent
Contacts

Christoph Königs, PhD

+496963018

christoph.koenigs@kgu.de

CONTACT

Christoph Bidlingmaier, MD

+498944005

Christoph.bidlingmaier@med.uni-muenchen.de

CONTACT