The International Registry for Leigh Syndrome
Recruiting
Observational Study
Leigh Syndrome
Leigh Disease
Leigh's Necrotizing Encephalopathy
Subacute Necrotizing Encephalomyopathy
Subacute Necrotizing Encephalomyelopathy
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 0 Days – 100
- Sex
- Any
- Study type
- Observational
- Participants needed
- 200 (estimated)
- Sponsor
- The University of Texas Health Science Center, Houston · Other
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About This Trial
The purpose of this study is to develop a database containing clinical and laboratory information for patients with Leigh syndrome. The goal is to provide a greater understanding of Leigh syndrome allowing further characterization of this disease.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* All participants with a diagnosis of Leigh syndrome will be invited to participate
Exclusion Criteria:
* People without Leigh syndrome
Contacts