Registry for Patients With X-Linked Hypophosphatemia

Recruiting Observational Study
X-Linked Hypophosphatemia
No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Sex
Any
Study type
Observational
Participants needed
1,489 (estimated)
Sponsor
Kyowa Kirin Pharmaceutical Development Ltd · Industry
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About This Trial

This is an international, multicentre, prospective, non-interventional, observational Registry of patients with X-Linked hypophosphatemia (XLH). The main objective of this XLH Registry is to collect data to characterise the treatment, progression and long-term outcomes of XLH in both adult and paediatric settings.

Trial Locations
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Eligibility Criteria
A patient must meet the following criteria at the enrolment visit (baseline) to be eligible for inclusion into this XLH Registry Inclusion Criteria: 1. Patients aged from ≥0 years of age at baseline 2. In the opinion of the treating physician the patient has a clinical presentation, radiological, …
Contacts

Clinical Trial Cordinator

+49 15114861167

KKI-IMA-XLH-Registry@kyowakirin.com

CONTACT