A National Registry on Chinese Patients With Lymphangioleiomyomatosis
Recruiting
Observational Study
Pulmonary Function
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Female
- Study type
- Observational
- Participants needed
- 1,500 (estimated)
- Sponsor
- Peking Union Medical College Hospital · Other
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About This Trial
Pulmonary lymphangioleiomyomatosis (LAM), a disease characterized by diffuse cystic changes in the lung, is a rare disorder that affects almost exclusively women. The main objectives of this study are to accurately evaluate the prevalence of LAM, the status of disease, the diagnosis and treatment, the quality of care, and the health related outcomes in China.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
1. Gender: female.
2. Age: no limitation.
3. Diagnosis meets one of the following criteria, (1) definite or probable diagnosis of LAM based on ATS/JRS and ERS criteria. (2) Investigators recommend including of the patient.
Exclusion Criteria:
1. Suspected LAM patients without …
Contacts