Fibrous Dysplasia, McCune-Albright Syndrome Patient Registry
Recruiting
Observational Study
Fibrous Dysplasia
McCune Albright Syndrome
Mazabraud Syndrome
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 600 (estimated)
- Sponsor
- Tovah Burstein · Other
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About This Trial
The FD/MAS Patient Registry is an IRB-approved research study that that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about their lives with FD or MAS.
Have you enrolled in the FD/MAS Patient Registry yet? Are you up-to-date on your surveys? Take a trip to www.fdmasregistry.org today to learn more about the project, enroll…
Trial Locations
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Eligibility Criteria
Inclusion Criteria any one or more of the following:
* clinical diagnosis of fibrous dysplasia
* clinical diagnosis of McCune-Albright syndrome
* clinical diagnosis of Mazabraud's syndrome
Contacts