Sickle-cell Disease Registry of the GPOH
Recruiting
Observational Study
Sickle Cell Disease
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 0 – 100
- Sex
- Any
- Study type
- Observational
- Participants needed
- 1,000 (estimated)
- Sponsor
- University Hospital Heidelberg · Other
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About This Trial
Sickle cell disease is one of the most common hereditary diseases. Most severe complications can be avoided if the disease is detected early and treated appropriately.
The sickle cell disease registry of the Society for Paediatric Oncology/Haematology aims at describing the epidemiology of sickle cell disease in German-speaking central Europe. Patients with sickle cell disease will be characteriz…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* signed informed consent
* current residency in either Germany, Austria or Switzerland
* sickle cell disease confirmed by hemoglobin analysis or molecular genetic analysis
* Homozygous sickle cell disease (HbSS)
* HbSC disease
* Sickle cell disease HbS / bThal
* Other,…
Contacts