Registry for Patients With Erdheim-Chester Disease and Other Histiocytoses

Recruiting Observational Study
Erdheim-Chester Disease
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
18 and older
Sex
Any
Study type
Observational
Participants needed
500 (estimated)
Sponsor
Memorial Sloan Kettering Cancer Center · Other
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About This Trial
The investigators want to understand more about what kinds of health problems are caused by histiocytosis, what happens as a result of different treatments, and how ECD affects people's lives, their feelings and their attitudes. The investigators also want to learn how these things change over time for people with these conditions. To try to figure this out, doctors would like to collect informati…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Diagnosis of Erdheim-Chester Disease, Langerhans cell histiocytosis, Rosai Dorfman disease, or another histiocytic neoplasm by either 1) documented histopathologic establishing ECD or HN or 2) documented histopathologic findings compatible with Erdheim-Chester disease or HN in…
Contacts

Eli Diamond, MD

212-610-0243

diamone1@mskcc.org

CONTACT

Katherine Panageas, PhD

646-888-8237

CONTACT