Patient Reported Outcomes Burdens and Experiences - Phase 3

Recruiting Observational Study
Hemophilia Chronic Disease
No Study Drug Researchers observe your health over time — no experimental treatment is given.
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Review the details below, then apply to join this clinical trial.

At a Glance
Sex
Any
Study type
Observational
Participants needed
1,000 (estimated)
Sponsor
McMaster University · Other
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About This Trial

The PROBE Phase-3 study will collect data on patient reported outcomes, burdens, and experiences in patients living with hemophilia. The investigators will perform comparisons among countries, within country over time, within country against national normative data.

Trial Locations
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Eligibility Criteria
Inclusion Criteria: * PWH will be recruited through national hemophilia patient organizations utilizing their existing membership rosters, social media outlets and meetings / events. The investigators are not proposing a pre-determined method of PWH recruitment. They will utilize the information ac…
Contacts

Mark Skinner

202.253.8342

mskinnerdc@gmail.com

CONTACT

Alfonso Iorio

iorioa@mcmaster.ca

CONTACT