Swiss Primary Ciliary Dyskinesia Registry
Recruiting
Observational Study
Primary Ciliary Dyskinesia
Kartagener Syndrome
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 800 (estimated)
- Sponsor
- University of Bern · Other
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About This Trial
The Swiss Primary Ciliary Dyskinesia (PCD) Registry is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with PCD in Switzerland and provides data for national and international monitoring and research.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Patients diagnosed with primary ciliary dyskinesia
* Signed informed consent or assent
Exclusion Criteria:
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Contacts