MyVHL: Patient Natural History Study
Recruiting
Observational Study
Von Hippel-Lindau Disease
Hereditary Leiomyomatosis and Renal Cell Cancer
Birt-Hogg-Dube Syndrome
SDHB Gene Mutation
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 10,000 (estimated)
- Sponsor
- Joshua Mann, MPH · Other
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
Check Your Eligibility
About This Trial
MyVHL is a multi-patient database which helps researchers identify patterns across VHL patients. MyVHL provides you -and researchers -with more complete information about VHL, like how your lifestyle, medications, and other factors impact the disease and quality of life. These insights help you better understand the condition and help researchers know where to focus their efforts.
Due to its rari…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* All patients with von Hippel-Lindau Disease (VHL)
Exclusion Criteria:
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Contacts