ADPKD Patient Registry for Polycystic Kidney Disease
ADPKD Patient Registry
Recruiting
Observational Study
Polycystic Kidney Diseases
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 3,000 (estimated)
- Sponsor
- PKD Foundation · Other
Who this trial is looking for
This trial is looking for people diagnosed with autosomal dominant polycystic kidney disease (ADPKD) to join an online network. Participants will share information about their health to help researchers improve patient care and connect with clinical studies.
Are You a Good Fit for This Trial?
You may be able to join if
- I have been diagnosed with autosomal dominant polycystic kidney disease (ADPKD)
You may not be able to join if
- I am a caretaker, family member, or friend of someone with ADPKD
Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.
Think this trial could be right for you?
Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.
Check Your Eligibility
About This Trial
The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and support patient needs in the following ways:
* Connect ADPKD patients with opportunities to join c…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Diagnosis or suspected diagnosis with autosomal dominant polycystic kidney disease (ADPKD)
Exclusion Criteria:
* caretakers, family members or friends of individuals with ADPKD
Contacts