ADPKD Patient Registry

Recruiting Observational Study
Polycystic Kidney Diseases
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
Ready to participate?

Review the details below, then apply to join this clinical trial.

At a Glance
Sex
Any
Study type
Observational
Participants needed
3,000 (estimated)
Sponsor
PKD Foundation · Other
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About This Trial
The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and support patient needs in the following ways: * Connect ADPKD patients with opportunities to join c…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Diagnosis or suspected diagnosis with autosomal dominant polycystic kidney disease (ADPKD) Exclusion Criteria: * caretakers, family members or friends of individuals with ADPKD
Contacts

Elise Hoover

816-268-8478

eliseh@pkdcure.org

CONTACT

Registry staff

registry@pkdcure.org

CONTACT