Registry of Osteogenesis Imperfecta
Recruiting
Observational Study
Osteogenesis Imperfecta
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 5,000 (estimated)
- Sponsor
- Luca Sangiorgi · Other
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About This Trial
ROI is a retrospective and prospective registry, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc. This approach has been developed to corroborate and integrate data from different sources…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* All Osteogenesis Imperfecta patients, including prenatal and fetal diagnosis of Osteogenesis Imperfecta
Exclusion Criteria:
* Any condition unrelated to Osteogenesis Imperfecta
Contacts