Pregnancy in Women With Rare Multisystemic Vascular Diseases: COGRare5 Study
Recruiting
Observational Study
Vascular Anomaly
Osler Rendu Disease
Marfan Syndrome or Related
Lymphedema Primary
Arteriovenous Malformations
Cerebrospinal; Disorder
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 18 – 45
- Sex
- Female
- Study type
- Observational
- Participants needed
- 400 (estimated)
- Sponsor
- Hospices Civils de Lyon · Other
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About This Trial
There are no prospective studies of pregnancies for the diseases studied here in (Heredity Hemorrhagic Telangiectasia, Marfan syndrome or related, primary lower limb lymphedema, superficial arteriovenous malformations, and cerebro-spinal arteriovenous malformations) although complications of these can present life-threatening health problems for the mother and her baby.
The purpose of this Nation…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Women aged ≥ 18 years and ≤45 years at the time of inclusion
* Pregnant and/or having given birth less than 1 month (≤ 30 days)
* Clinically and/or radiological and/or molecular biology diagnosis of a rare vascular disease before or during pregnancy or one month after delivery…
Contacts