An International Patient-led Registry in Fibrotic Interstitial Lung Diseases Using eHealth Technology

Recruiting Observational Study
Pulmonary Fibrosis
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
18 and older
Sex
Any
Study type
Observational
Participants needed
700 (estimated)
Sponsor
Erasmus Medical Center · Other
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About This Trial

The I-FILE study is a prospective multicenter, multinational observational study where the feasibility of a patient-led registry using home monitoring in patients with pulmonary fibrosis will be evaluated. The aim of the study is to gain more insights in disease behavior in patients with pulmonary fibrosis, so in future patients with progressive disease can be better identified.

Trial Locations
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Eligibility Criteria
Inclusion Criteria: Newly diagnosed patients with F-ILD according to the ATS/ERS criteria by a multidisciplinary ILD team : * MDT diagnosis ≤ 6 months before inclusion * Treatment for F-ILD ≤ than 1 month Exclusion Criteria: * Not able to speak, read or write in the native language of the countr…
Contacts

Marlies Wijsenbeek, MD PhD

+31107030323

m.wijsenbeek-lourens@erasmusmc.nl

CONTACT