Autonomic Small Fiber Neuropathy and Ehlers Danlos Syndromes - Prospective Study and Registry

Recruiting Observational Study
Autonomic Neuropathy Ehlers-Danlos Syndrome Hypermobility Type Small Fiber Neuropathy Postural Tachycardia Syndrome
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
18 – 80
Sex
Any
Study type
Observational
Participants needed
200 (estimated)
Sponsor
RWTH Aachen University · Other
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About This Trial
We examine patients with different autonomic neuropathies and Ehlers Danlos syndromes compared to healthy controls at three different points over time (baseline, after 3 months and after 1.5 years) to gain knowledge about the course of this disease and understand its pathophysiology, with a focus on Small Fiber neuropathy. Moreover we will validate the german version of the Malmö POTS Score and es…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * autonomic neuropathy * Postural orthostatic tachycardia syndrome * hypermobile or classical Ehlers Danlos syndromes * Chronic fatigue syndrome, mast cell activation syndrome and/or PostCOVID * healty controls * between 18-80 years * in patients: diagnosis and clinical testing …
Contacts

Andrea Maier, physician

+492418089600

ans-ambulanz@ukaachen.de

CONTACT

Denver Igharo, student

+492418089600

ans-ambulanz@ukaachen.de

CONTACT