Study on Kidney Disease in Children and Adults
Autosomal Dominant Polycystic Kidney Disease (ADPKD) Study
Recruiting
Observational Study
ADPKD
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- Up to 18
- Sex
- Any
- Study type
- Observational
- Participants needed
- 300 (estimated)
- Sponsor
- Children's Hospital of Philadelphia · Other
Who this trial is looking for
This trial is looking for people diagnosed with Autosomal Dominant Polycystic Kidney Disease (ADPKD) to learn more about the condition and improve resources for others. Participants may share their clinical information and may take part in related research.
Are You a Good Fit for This Trial?
You may be able to join if
- I have been diagnosed with ADPKD
- I have clinical information or test results that show I have ADPKD
You may not be able to join if
- I have Autosomal Recessive Polycystic Kidney Disease (ARPKD)
- I have urinary tract malformations
- I have major congenital anomalies of other systems
Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.
Think this trial could be right for you?
Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.
Check Your Eligibility
About This Trial
Autosomal Dominant Polycystic Kidney Disease (ADPKD) is the most common genetic cause of renal failure. For several decades, ADPKD was regarded as an adult-onset disease. In the last decade, it has become more widely appreciated that the disease course begins in childhood. However, evidence-based guidelines on how to manage and approach children diagnosed with or at-risk for of ADPKD are lacking. …
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Demonstration of ADPKD by clinical information, imaging studies, biopsy, autopsy, or genetic testing.
Exclusion Criteria:
* Patients with Autosomal Recessive Polycystic Kidney disease (ARPKD), urinary tract malformations or major congenital anomalies of other systems suggest…
Contacts