A Pilot Study for Systematic Neonatal Screening for Lysosomal Storage Diseases Using Tandem Mass Spectrometry

Recruiting Observational Study
Neonatal Screening Lysosomal Storage Diseases
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
1 Day – 4 Days
Sex
Any
Study type
Observational
Participants needed
100,000 (estimated)
Sponsor
University Hospital, Rouen · Other
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About This Trial
The study will include all newborns in Normandie region for 3 years (about 105,000 births) for whom signed consent by one (or two) parents will be collected. Based on our previous pilot study (2011) assessing MCAD and PKU using tandem mass spectrometry-based method in Normandie region in which informed consents have been signed for all newborns (43,000) but we are expecting a great willingness to …
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Newborn in a Normandy maternity hospital * Newborn participating in the National Neonatal Screening Program * Holder(s) of parental authority having read and understood the information letter and signed the informed consent form Exclusion Criteria: There are no criteria for …
Contacts

Soumeya BEKRI, Pr

+3323288

soumeya.bekri@chu-rouen.fr

CONTACT

Julien BLOT

+3323288

julien.blot@chu-rouen.fr

CONTACT