Identifying and Caring for Individuals With Inherited Cancer Syndrome
Recruiting
N/AInterventional Study
BRCA1/2-Associated Hereditary Breast and Ovarian Cancer SyndromeBreast Ductal Carcinoma In SituHematopoietic and Lymphoid System NeoplasmHereditary Neoplastic SyndromeLynch SyndromeMalignant Solid Neoplasm
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
Ready to participate?
Review the details below, then apply to join this clinical trial.
At a Glance
Age
18 and older
Sex
Any
Study type
Interventional
Purpose
Screening
Participants needed
27,500 (estimated)
Sponsor
OHSU Knight Cancer Institute · Other
Who this trial is looking for
This trial is looking for adults who may have inherited cancer syndromes. Participants can get free genetic testing and will be asked to provide a DNA sample.
Are You a Good Fit for This Trial?
You may be able to join if
I am 18 years of age or older
I have received genetic counseling in the past 1-2 years
I have genetic variants like BRCA1, BRCA2, or Lynch syndrome
I have had an encounter with a healthcare provider in the past 12 months
I have been diagnosed with any type of cancer, including ductal carcinoma in situ
You may not be able to join if
I am part of the no contact list for this study
I am part of Cohort A
Summarized in plain language from this trial's official eligibility criteria.
The full criteria are further down this page — only the research team can
confirm whether you qualify.
Think this trial could be right for you?
Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.
This trial examines approaches to identify and care for individuals with inherited cancer syndrome. The purpose of this study is to offer no cost genetic testing to the general public. Researchers hope to learn the value of providing broad, public-wide testing for high risk cancer types (like hereditary breast and ovarian cancer or Lynch syndromes) instead of only testing people whose families are…
This trial examines approaches to identify and care for individuals with inherited cancer syndrome. The purpose of this study is to offer no cost genetic testing to the general public. Researchers hope to learn the value of providing broad, public-wide testing for high risk cancer types (like hereditary breast and ovarian cancer or Lynch syndromes) instead of only testing people whose families are known to be high risk.
Trial Locations
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City
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Status
Eligibility Criteria
Inclusion Criteria:
* ALL COHORTS: 18 years of age or older
* Retrospective COHORT A: Per HIPAA waiver, Retrospective Cohort A will not actively consent
* Retrospective COHORT A: Patients may or may not be diagnosed with cancer
* Retrospective COHORT A: Patients have received genetic counseling in …
Inclusion Criteria:
* ALL COHORTS: 18 years of age or older
* Retrospective COHORT A: Per HIPAA waiver, Retrospective Cohort A will not actively consent
* Retrospective COHORT A: Patients may or may not be diagnosed with cancer
* Retrospective COHORT A: Patients have received genetic counseling in the past 5 years
* Retrospective COHORT A: Patients have genetic variants that include BRCA1, BRCA2 and/or Lynch syndrome
* COHORT A: Per Health Insurance Portability and Accountability Act (HIPAA) waiver, Cohort A returns survey as consent
* COHORT A: Patients may or may not be diagnosed with cancer
* COHORT A: Patients have received genetic counseling in the past 1 - 2 years
* COHORT A: Patients have genetic variants that include BRCA1, BRCA2 and/or Lynch syndrome
* COHORT A: INCLUSIVE of no contact list to exclude from Cohort B
* COHORT B: Creation of secure Healthy Oregon Project (HOP) app account
* COHORT B: Consent to this project, either hard or electronic signature
* COHORT B: Consent to the HOP repository, either hard or electronic signature
* COHORT B: Choosing to submit a deoxyribonucleic acid (DNA) sample
* COHORT B: Patients diagnosed with any National Cancer Institute (NCI)-reportable cancers, including ductal carcinoma in situ (DCIS) and/or in situ breast cancer
* COHORT B: Must have had an encounter within past twelve months
* COHORT B: Exclude Cohort A
* COHORT C: Creation of secure Hop app account
* COHORT C: Consent to this project, either hard or electronic signature
* COHORT C: Consent to the HOP repository, either hard or electronic signature
* COHORT C: Choosing to submit a DNA sample
Contacts
No contact information available.
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