Study to Evaluate Biological & Clinical Effects of Significantly Corrected CFTR Function in Infants & Young Children

Recruiting Observational Study
Cystic Fibrosis
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
Up to 10
Sex
Any
Study type
Observational
Participants needed
210 (estimated)
Sponsor
Sonya Heltshe · Other
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About This Trial

This is a two-part, multi-center, prospective longitudinal, exploratory study of highly effective cystic fibrosis transmembrane conductance regulator (CFTR) modulators and their impact on children with cystic fibrosis (CF).

Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Part A: * Less than 10 years of age at the first study visit. * Documentation of a CF diagnosis. Part B: * Participated in Part A OR less than 7 years of age at the first study visit. * Documentation of a CF diagnosis. * CFTR mutations consistent with FDA labeled indica…
Contacts

Rachael Buckingham

206-884-7517

rachael.buckingham@seattlechildrens.org

CONTACT

Anna Mead

206-884-7531

anna.mead@seattlechildrens.org

CONTACT