Living With Primary Ciliary Dyskinesia (Living With PCD)
Recruiting
Observational Study
Primary Ciliary Dyskinesia
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 1,500 (estimated)
- Sponsor
- University of Bern · Other
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About This Trial
Living with PCD (formerly COVID-PCD) is a participatory research project that aims to answer emerging questions about primary ciliary dyskinesia (PCD) in order to improve the health and quality of life of people with PCD. Persons with confirmed or suspected PCD from anywhere in the world can participate. The study is advertised through patient support groups and participants register online after …
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* People of any age with reported suspected or confirmed Primary Ciliary Dyskinesia who gave consent to participate in the study
Exclusion Criteria:
* People who report not to have suspected or confirmed Primary Ciliary Dyskinesia
Contacts