The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)
Recruiting
Observational Study
Primary Ciliary Dyskinesia
Kartagener Syndrome
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 1,000 (estimated)
- Sponsor
- University of Bern · Other
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About This Trial
The Ear-Nose-Throat (ENT) Prospective International Cohort of patients with Primary Ciliary Dyskinesia (EPIC-PCD) is a prospective observational clinical cohort study, set up as a multinational multi-centre study. It is embedded into routine patient care of participating reference centres for PCD and patients keep being managed according to local procedures and guidelines.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Diagnosis of PCD (clinical and test certified)
* Patient must undergo an ENT examination minimum once a year as part of their clinical follow-up
Exclusion Criteria:
None
Contacts