Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Recruiting Observational Study
Desmoplastic Small Round Cell Tumor
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Sex
Any
Study type
Observational
Participants needed
250 (estimated)
Sponsor
Memorial Sloan Kettering Cancer Center · Other
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About This Trial
This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this da…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Participants must have a diagnosis of desmoplastic small round cell tumor * Participants may be of any age as long as the appropriate consent and assent may be obtained * Willing to provide historical and longitudinal clinical data Exclusion Criteria: * Participant unwilling…
Contacts

Emily Slotkin, MD

1-833-675-5437

slotkine@mskcc.org

CONTACT

Shakeel Modak, MD

1-833-675-5437

CONTACT