ETMR One: An International Registry and Research Platform for Children With Embryonal Tumor With Multilayer Rosettes
Recruiting
Observational Study
Embryonal Tumor With Multilayered Rosettes
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 100 (estimated)
- Sponsor
- Hackensack Meridian Health · Other
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About This Trial
This research is being done to find out more information about a brain tumor called Embryonal Tumor with Multilayer Rosettes (ETMR) by collecting medical information from children who have this disease.
The purpose of this research study is to create and maintain a research database for patients with ETMR. The database will include information about occurrence rates, patient information, tumor ti…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
1. Patients of any age
2. Patients must have either a histologically confirmed primary intracranial CNS Embryonal Tumor with Multilayer Rosettes (as agreed upon by central review or local pathologist OR
3. Patients must have tumor tissue that possesses C19MC amplification . Cent…
Contacts