International Registry of Patients With Alpha Thalassemia
Recruiting
Observational Study
Alpha-Thalassemia
Alpha Thalassemia Major
Alpha Thalassemia Minor
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 500 (estimated)
- Sponsor
- University of California, San Francisco · Other
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About This Trial
This is an international prospective registry of patients with Alpha thalassemia to understand the natural history of the disease and the outcomes of fetal therapies, with the overall goal of improving the prenatal management of patients with Alpha thalassemia.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* diagnosis of alpha thalassemia (prenatal or postnatal) with genotype consistent with ATM or BHFS phenotype
* referred to the University of California, San Francisco Fetal Treatment Center for fetal diagnosis, management and/or evaluation for the ongoing in utero stem cell tran…
Contacts